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Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape
[conference paper]
This document is a part of the following document:
Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty - Interventions for Open Digital Futures
Corporate Editor
Weizenbaum Institute for the Networked Society - The German Internet Institute
Abstract In a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one's heartbeat, creating an inventory of one's personal data, and creating a qualitative personal he... view more
In a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one's heartbeat, creating an inventory of one's personal data, and creating a qualitative personal health visualization. This article details the workshop structure and exercises and includes a summary of the discussion, which constructively encompassed both the empowering and the uncomfortable aspects of digital health data collection in a constructive manner. The workshop's design used the format of hands-on, expressive drawing activities to enable participants to achieve depth and breadth in a relatively short discussion about personal health, data autonomy, institutional trust, and consent. Critical discourse about data, especially health data, is a valuable experience for every person whose health data has been or is being collected; and approaches that take personal data as a starting point can support the practice of digital/data sovereignty more broadly.... view less
Keywords
health care delivery system; visualization; data acquisition; data protection
Classification
Technology Assessment
Free Keywords
digital health; data visualization; data ethics; self-tracking
Collection Title
Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty - Interventions for Open Digital Futures
Editor
Herlo, Bianca; Irrgang, Daniel
Conference
4. Weizenbaum Conference "Practicing Sovereignty: Interventions for Open Digital Futures". Berlin, 2022
Document language
English
Publication Year
2023
City
Berlin
Page/Pages
p. 131-141
ISSN
2510-7666
Status
Primary Publication; reviewed