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@article{ Moreira2016, title = {Quality of life of family caregivers of people with Down Syndrome}, author = {Moreira, Ramon Missias and Oliveira, Bruno Gonçalves de and Cruz, Diego Pires and Bomfim, Eliane dos Santos and Camargo, Climene Laura de and Sales, Zenilda Nogueira}, journal = {Revista de Pesquisa: Cuidado é Fundamental Online}, number = {3}, pages = {4826-4832}, volume = {8}, year = {2016}, issn = {2175-5361}, doi = {https://doi.org/10.9789/2175-5361.2016.v8i3.4826-4832}, urn = {https://nbn-resolving.org/urn:nbn:de:0168-ssoar-53728-8}, abstract = {Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content analysis technique. Results: It was observed that caregivers are mothers over the age of 30, who declared themselves as racially mixed (Pardo in Portuguese), live with a partner, practice some type of physical activity and attend any educational institution. Moreover, they had as main occupation the caregiver role. Caregivers reported that access to leisure; health; family relationships; general welfare; Material and rights were the factors that influence the quality of life. Conclusion: it was concluded that caregiver parents of people with Down syndrome had different views on the quality of life.}, keywords = {Eltern; parents; Betreuung; care; Wahrnehmung; perception; Lebensqualität; quality of life; geistige Behinderung; mental disability; Pflegeperson; caregiver}}