Sickle cell disease: perspectives on the assistance provided in primary attention

Moraes, Laura Xavier de; Bushatsky, Magaly; Barros, Mariana Boulitreau Siqueira Campos; Barros, Bruna Ramos; Bezerra, Maria Gleciany Alves

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@article{ Moraes2017,
 title = {Sickle cell disease: perspectives on the assistance provided in primary attention},
 author = {Moraes, Laura Xavier de and Bushatsky, Magaly and Barros, Mariana Boulitreau Siqueira Campos and Barros, Bruna Ramos and Bezerra, Maria Gleciany Alves},
 journal = {Revista de Pesquisa: Cuidado é Fundamental Online},
 number = {3},
 pages = {768-775},
 volume = {9},
 year = {2017},
 issn = {2175-5361},
 doi = {https://doi.org/10.9789/2175-5361.2017.v9i3.768-775},
 urn = {https://nbn-resolving.org/urn:nbn:de:0168-ssoar-53495-0},
 abstract = {Objective: To investigate the vision of patients with sickle cell disease on assistance provided in the Family Health Units in accordance with the decree 1,391/05. Methods: Cross-sectional, descriptive, quanti-qualitative study; conducted with twenty six patients with sickle cell disease treated at Hemope. The study was approved by the CEP with CAAE: 45243015.7.0000.5195. Results: There was a dissatisfaction among people with sickle cell disease towards the care that is provided to them in primary attention, leading to a low accreditation that the service has on the population. Conclusion: The premises established by Ordinance GM 1391/05 have not been met after ten years of its implementation. Public policies aimed at black people need to be rescued so that there is continuity of care.},
 keywords = {Erbkrankheit; hereditary disease; Pflege; caregiving; öffentliches Gesundheitswesen; public health care delivery system; Gesundheitsversorgung; health care}}