dc.contributor.author | Zinzi, Paola | de |
dc.contributor.author | Salmaso, Dario | de |
dc.contributor.author | Frontali, Marina | de |
dc.contributor.author | Jacopini, Gioia | de |
dc.date.accessioned | 2010-11-11T04:00:00Z | de |
dc.date.accessioned | 2012-08-29T23:13:31Z | |
dc.date.available | 2012-08-29T23:13:31Z | |
dc.date.issued | 2009 | de |
dc.identifier.uri | http://www.ssoar.info/ssoar/handle/document/20340 | |
dc.description.abstract | Aim: To investigate the subjective evaluation of an intensive rehabilitation programme and outcomes by people with Huntington’s disease (HD) and their caregivers. Subjects and methods: A written questionnaire was mailed to people with mild-moderate HD (n = 40) who had completed at least one course of the intensive, inpatient rehabilitation protocol carried out at a facility of the Italian National Welfare System in the previous 3 years (on average 8.6 months before). Descriptive and inferential statistics were used. Thematic analyses were also conducted on written texts. Results: The response rate was 93%. A general improvement after discharge was perceived by all of the respondents. Improvements were reported on gait, balance, motor control, and fall reduction. Duration of benefits was estimated to last from 1 to 3 months by 71% of informants with no carry over to the next admission, which occurred on average 5.7 months later. Ameliorations were also reported in speech and swallowing, and several psychosocial aspects: mood, apathy, familiar and social relationships (binomial test, p < 0.05). As far as organisational aspects of structure and programme are concerned, all respondents expressed a positive evaluation (binomial test, p < 0.05). The mean vote given to the whole rehabilitation experience by patients on a 10-point scale was 7.3, confirmed by caregivers’ mean vote of 7.4. Additional free comments were added by the majority of respondents (n = 35). From caregivers’ and patient’s perspectives, relevant themes emerged. Conclusion: An intensive rehabilitation programme in people with HD is perceived to produce relevant improvements beyond bodily motor and functional performance. Patients’ and caregivers’ evaluations are relevant in health-care research in order to assess the worth of a programme and to define new ones. | en |
dc.language | en | de |
dc.subject.ddc | Sozialwissenschaften, Soziologie | de |
dc.subject.ddc | Social sciences, sociology, anthropology | en |
dc.subject.ddc | Medicine and health | en |
dc.subject.ddc | Medizin und Gesundheit | de |
dc.subject.other | Huntington's disease; Postal survey; Patient and caregiver perspective; Health-care research | |
dc.title | Patients' and caregivers' perspectives: assessing an intensive rehabilitation programme and outcomes in Huntington's disease | en |
dc.description.review | begutachtet (peer reviewed) | de |
dc.description.review | peer reviewed | en |
dc.source.journal | Journal of Public Health | de |
dc.source.volume | 17 | de |
dc.publisher.country | DEU | |
dc.source.issue | 5 | de |
dc.subject.classoz | Medizin, Sozialmedizin | de |
dc.subject.classoz | Health Policy | en |
dc.subject.classoz | Gesundheitspolitik | de |
dc.subject.classoz | Medicine, Social Medicine | en |
dc.subject.thesoz | rehabilitation | en |
dc.subject.thesoz | Rehabilitation | de |
dc.identifier.urn | urn:nbn:de:0168-ssoar-203401 | de |
dc.date.modified | 2010-11-16T09:16:00Z | de |
dc.rights.licence | PEER Licence Agreement (applicable only to documents from PEER project) | de |
dc.rights.licence | PEER Licence Agreement (applicable only to documents from PEER project) | en |
ssoar.gesis.collection | SOLIS;ADIS | de |
ssoar.contributor.institution | http://www.peerproject.eu/ | de |
internal.status | 3 | de |
internal.identifier.thesoz | 10038322 | |
dc.type.stock | article | de |
dc.type.document | journal article | en |
dc.type.document | Zeitschriftenartikel | de |
dc.rights.copyright | f | de |
dc.source.pageinfo | 331-338 | |
internal.identifier.classoz | 50100 | |
internal.identifier.classoz | 11006 | |
internal.identifier.journal | 203 | de |
internal.identifier.document | 32 | |
internal.identifier.ddc | 610 | |
internal.identifier.ddc | 300 | |
dc.identifier.doi | https://doi.org/10.1007/s10389-009-0252-y | de |
dc.description.pubstatus | Postprint | en |
dc.description.pubstatus | Postprint | de |
internal.identifier.licence | 7 | |
internal.identifier.pubstatus | 2 | |
internal.identifier.review | 1 | |
internal.check.abstractlanguageharmonizer | CERTAIN | |
internal.check.languageharmonizer | CERTAIN_RETAINED | |