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Co-constructing ancestry through direct-to-consumer genetic testing: Challenges and implications

Die Ko-Konstruktion von Herkunft mittels Direct-to-Consumer-Gentests: Herausforderungen und Implikationen
[journal article]

Lang, Alexander
Winkler, Florian

Abstract

Direkt an Konsument*innen (direct-to-consumer, DTC) über das Internet vermarktete genealogische Gentests sollen die Abstammung der Getesteten aufzeigen. Während diese Gentests als Mittel verstanden werden können, die biologisch fixierte Herkunft zu bestimmen, untersucht der vorliegende Artikel, wie ... view more

Direkt an Konsument*innen (direct-to-consumer, DTC) über das Internet vermarktete genealogische Gentests sollen die Abstammung der Getesteten aufzeigen. Während diese Gentests als Mittel verstanden werden können, die biologisch fixierte Herkunft zu bestimmen, untersucht der vorliegende Artikel, wie Unternehmen und Kund*innen die Abstammung mittels dieser Gentests ko-konstruieren. Die Studie stützt sich auf eine Analyse relevanter Literatur, qualitative Interviews mit Expert*innen und Stakeholder*innen, Webseitenanalysen und eine autoethnographische Selbstbeobachtung. Es wird gezeigt, wie DTC-Gentestunternehmen durch ihr Marketing, die Entwicklung spezifischer Datenbanken und die Präsentation der Testresultate bestimmte Konzepte von Herkunft kreieren, aber auch, wie die Kund*innen ihre Testergebnisse interpretieren und in ihre Biographien und ihr Leben einbauen. Mit Blick auf die möglichen sozialen Auswirkungen von DTC-Gentests wird ihre Einstufung als Unterhaltung hinterfragt.... view less


Direct-to-consumer (DTC) genetic ancestry tests offered via the internet supposedly uncover the ancestry of those tested. While these tests might be seen as a means to find a biologically inscribed and fixed genealogy, this paper explores how companies and customers co-construct ancestry through gen... view more

Direct-to-consumer (DTC) genetic ancestry tests offered via the internet supposedly uncover the ancestry of those tested. While these tests might be seen as a means to find a biologically inscribed and fixed genealogy, this paper explores how companies and customers co-construct ancestry through genetic ancestry testing. The study draws on a review of relevant literature, qualitative interviews with experts and stakeholders, a website analysis, and an autoethnographic self-observation. It shows how DTC genetic testing companies create specific concepts of ancestry in their marketing, development of specific databases, and presentation of results, but also how users interpret and incorporate their results into their own genealogies and lives. Looking at the potential social impact of DTC ancestry testing, the paper questions its categorization as recreational activity or entertainment.... view less

Keywords
genealogy; genetic test; social effects

Classification
Technology Assessment
Sociology of Science, Sociology of Technology, Research on Science and Technology

Free Keywords
ancestry; co-construction; direct-to-consumer (DTC) genetic testing

Document language
English

Publication Year
2021

Page/Pages
p. 30-35

Journal
TATuP - Zeitschrift für Technikfolgenabschätzung in Theorie und Praxis / Journal for Technology Assessment in Theory and Practice, 30 (2021) 2

Issue topic
Next generation sequencing: Challenges for science and society / Next Generation Sequencing: Herausforderungen für Wissenschaft und Gesellschaft

DOI
https://doi.org/10.14512/tatup.30.2.30

ISSN
2567-8833

Status
Published Version; peer reviewed

Licence
Creative Commons - Attribution 4.0


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© 2007 - 2025 Social Science Open Access Repository (SSOAR).
Based on DSpace, Copyright (c) 2002-2022, DuraSpace. All rights reserved.