Quality of life of family caregivers of people with Down Syndrome

Moreira, Ramon Missias; Oliveira, Bruno Gonçalves de; Cruz, Diego Pires; Bomfim, Eliane dos Santos; Camargo, Climene Laura de; Sales, Zenilda Nogueira

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%T Quality of life of family caregivers of people with Down Syndrome
%A Moreira, Ramon Missias
%A Oliveira, Bruno Gonçalves de
%A Cruz, Diego Pires
%A Bomfim, Eliane dos Santos
%A Camargo, Climene Laura de
%A Sales, Zenilda Nogueira
%J Revista de Pesquisa: Cuidado é Fundamental Online
%N 3
%P 4826-4832
%V 8
%D 2016
%@ 2175-5361
%> https://nbn-resolving.org/urn:nbn:de:0168-ssoar-53728-8
%X Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content analysis technique. Results: It was observed that caregivers are mothers over the age of 30, who declared themselves as racially mixed (Pardo in Portuguese), live with a partner, practice some type of physical activity and attend any educational institution. Moreover, they had as main occupation the caregiver role. Caregivers reported that access to leisure; health; family relationships; general welfare; Material and rights were the factors that influence the quality of life. Conclusion: it was concluded that caregiver parents of people with Down syndrome had different views on the quality of life.
%C MISC
%G en
%9 Zeitschriftenartikel
%W GESIS - http://www.gesis.org
%~ SSOAR - http://www.ssoar.info