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Quality of life of family caregivers of people with Down Syndrome
Qualidade de vida de cuidadores familiares de pessoas com Síndrome de Down
Calidad de vida de cuidadores familiares de personas con Síndrome de Down
[journal article]
Abstract Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content a... view more
Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content analysis technique. Results: It was observed that caregivers are mothers over the age of 30, who declared themselves as racially mixed (Pardo in Portuguese), live with a partner, practice some type of physical activity and attend any educational institution. Moreover, they had as main occupation the caregiver role. Caregivers reported that access to leisure; health; family relationships; general welfare; Material and rights were the factors that influence the quality of life. Conclusion: it was concluded that caregiver parents of people with Down syndrome had different views on the quality of life.... view less
Keywords
parents; care; perception; quality of life; mental disability; caregiver
Classification
Medical Sociology
Social Problems
Document language
English
Publication Year
2016
Page/Pages
p. 4826-4832
Journal
Revista de Pesquisa: Cuidado é Fundamental Online, 8 (2016) 3
DOI
https://doi.org/10.9789/2175-5361.2016.v8i3.4826-4832
ISSN
2175-5361
Status
Published Version; peer reviewed