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Sickle cell disease: perspectives on the assistance provided in primary attention
Doença falciforme: perspectivas sobre assistência prestada na atenção primária
Anemia de células falciformes:perspectivas sobre asistencia prestada en la atención primaria
[journal article]
Abstract Objective: To investigate the vision of patients with sickle cell disease on assistance provided in the Family Health Units in accordance with the decree 1,391/05. Methods: Cross-sectional, descriptive, quanti-qualitative study; conducted with twenty six patients with sickle cell disease treated at ... view more
Objective: To investigate the vision of patients with sickle cell disease on assistance provided in the Family Health Units in accordance with the decree 1,391/05. Methods: Cross-sectional, descriptive, quanti-qualitative study; conducted with twenty six patients with sickle cell disease treated at Hemope. The study was approved by the CEP with CAAE: 45243015.7.0000.5195. Results: There was a dissatisfaction among people with sickle cell disease towards the care that is provided to them in primary attention, leading to a low accreditation that the service has on the population. Conclusion: The premises established by Ordinance GM 1391/05 have not been met after ten years of its implementation. Public policies aimed at black people need to be rescued so that there is continuity of care.... view less
Keywords
hereditary disease; caregiving; public health care delivery system; health care
Classification
Medical Sociology
Document language
English
Publication Year
2017
Page/Pages
p. 768-775
Journal
Revista de Pesquisa: Cuidado é Fundamental Online, 9 (2017) 3
DOI
https://doi.org/10.9789/2175-5361.2017.v9i3.768-775
ISSN
2175-5361
Status
Published Version; peer reviewed