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Entscheidungen am Lebensende in der Kinderpalliativmedizin: ein Erfahrungsbericht aus der klinischen Praxis

Decisions at the end of life in children's palliative care: experience from clinical practice
[journal article]

Kuhlen, Michaela

Abstract

'Trotz enormer Fortschritte in der Kinderheilkunde sterben in Deutschland krankheitsbedingt jährlich ca. 3.000 Kinder und Jugendliche bis zum 20. Lebensjahr, etwa 60% davon bereits im ersten Lebensjahr. Die angemessene Vorgehensweise am Lebensende - auch in der Pädiatrie -, so die These, ist oft das... view more

'Trotz enormer Fortschritte in der Kinderheilkunde sterben in Deutschland krankheitsbedingt jährlich ca. 3.000 Kinder und Jugendliche bis zum 20. Lebensjahr, etwa 60% davon bereits im ersten Lebensjahr. Die angemessene Vorgehensweise am Lebensende - auch in der Pädiatrie -, so die These, ist oft das liebevolle Unterlassen. Vor dem Hintergrund der Entwicklung der allgemeinen und der erst in den 1980er Jahren begonnenen pädiatrischen Palliativmedizin stellt der Beitrag Fallbeispiele aus der klinischen Praxis eines Universitätsklinikums vor. Dabei werden die Mechanismen für die von Medizinern, Patienten und Angehörigen zu treffenden Entscheidungen am Lebensende herausgearbeitet und zugleich die notwendigen Grenzen kinderpalliativmedizinischer Versorgung verdeutlicht.' (Autorenreferat)... view less


'In Germany, despite the enormous progress in pediatric medicine approximately 3.000 diseased children and adolescents under 20 years of age die each year - 60% of them already during their first year. Often the most adequate palliative treatment agreed upon - also in pediatrics - is the loving refr... view more

'In Germany, despite the enormous progress in pediatric medicine approximately 3.000 diseased children and adolescents under 20 years of age die each year - 60% of them already during their first year. Often the most adequate palliative treatment agreed upon - also in pediatrics - is the loving refraining from treatment during the patients' final phase. Against the background of the development of general palliative treatment and since the 1980s pediatric palliative treatment, the present report describes clinical case studies from a university hospital. The mechanisms of decision making by doctors, patients and their families during the final phase are evaluated, whereas at the same time the necessary limits of pediatric palliative care become clear.' (author's abstract)... view less

Keywords
palliative medicine; cancer; decision; Federal Republic of Germany; dying; diagnosis; North Rhine-Westphalia; death; patient; care; therapy; sense; life expectancy; psychosocial care; hospice; ontology; child; parent-child relationship; illness

Classification
Medical Sociology
Social History, Historical Social Research

Method
applied research; descriptive study; historical

Document language
German

Publication Year
2009

Page/Pages
p. 217-228

Journal
Historical Social Research, 34 (2009) 4

DOI
https://doi.org/10.12759/hsr.34.2009.4.217-228

ISSN
0172-6404

Status
Published Version; peer reviewed

Licence
Creative Commons - Attribution 4.0


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Based on DSpace, Copyright (c) 2002-2022, DuraSpace. All rights reserved.